Today marks 1 whole year since my little warriors first open heart surgery. I honestly remember it like it was yesterday, it was one of the toughest days I ever had to go through as a mother a first time mother at that.
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Brysons favorite person is his Dad, we have a special bond but that kid loves his daddy. They literally are Bestfriends let DeMarcus tell it.
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Being a Heart mom is by far one of the hardest yet most rewarding things I ever had to take on. It comes with lots of challenges, restless nights, long hospital stays, countless doctors appointments and never ending worry. Somedays I just sit and think about all the what if’s, what if his heart just stops, what if I put him to sleep one day and he never wakes up, or what if he’s doing so good right now and tomorrow it just all goes down hill, what if his next surgery isn’t his last and the list goes on and on.
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Critical Congenital Heart Disease (CCHD) is a term that refers to a group of serious heart defects that are present from birth. Babies with a critical CHD need surgery or other procedures in the first year of life.
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It’s the night before the procedure. Now, this isn’t a big procedure. It’s just something that needs to be done before his Glenn procedure, which is happening three days later. I’m not freaking out. Are you freaking out?
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It felt like the longest five days of my life leading up to this appointment. Hearing such life changing news just days prior, and having to wait the whole weekend before you could get any clarity on the whole situation was nerve wrecking to say the least. But, we had the first appointment that day, and boy was I ready to get there and get it over with.
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Today was the big day. The day every mom anxiously waits for: gender ultrasound day. I was finally going to get to see my little man for the first time since 6w2d when he was just a little blob and a sac. And yes, I knew it was a boy from the blood test taken at around 12 weeks.
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Congenital Heart Disease (CHD) or Congenital Heart Defect is the abnormality in the heart that develops before birth during the early stages of pregnancy when the baby’s heart is forming.
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